Okay - So I have managed to get another appointment with my actual consultant (result) and I've now been informed I will get follow-up check-ups, so that's good too. No scans but at least they will check me over every few months. Feel better about that. And I can discuss having a final PET at my next appointment. I made it very clear that I didn't trust my last PET and I couldn't accept remission until I had a PET I knew was 100% mine. And I think they understand that now (I hope).
On a less good note.... I got sent an invoice for some of my blood tests and things. Seriously?!! Since when did I have to pay for NHS treatment? Not impressed really as not one person mentioned I'd need to pay for anything to do with any of my treatments. So hopefully we can get this sorted too. I've let my nurse know and she's investigating for me :)
Now just to have my Port removed and my cervical cells to be sorted and I should be all good.
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