Today I went to my dr to see if I could get some caphosol. It's meant to be amazing for sore mouths (and costs the NHS £125 per bottle). To explain, my mouth feels like someone is constantly pouring jalapeño acid into it. Even yawning hurts. So the alcohol full stuff the hospital gave me is a big no no. Caphosol is meant to prevent and cover the mouth in a fake membrane to help stop the pain. Obviously getting the hospital to give you the expensive is probably mission impossible so I went to the dr and thankfully she prescribed me some :D it arrives tomorrow! Like they say, don't ask don't get!
Also went to the seaside today for fresh air. Me and the other half sat on a bench and watched a mental dog rush around. Was amusing. I did envy the big sandwich my boyfriend could eat. My mouth can't handle bread :( soon though I shall hopefully be able to have a good meal :)
I did mention my side effects to my nurse this morning but I got the usual "I don't know" and "that's never happened before". Most helpful as you can imagine! I'm a patient person and all that but sometimes it gets frustrating. Especially when you're in pain. But what can you do eh?! I'll just have to ask someone else at my next chemo. It's the eye thing that creeps me out the most!
Lets hope this magical mouth wash does wonders!
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ReplyDeleteAnd the best bit? You get it for free! :-)
ReplyDeletePossibly the only upside to the big "C" is free prescriptions for the duration...
Hope it works for you. And the eye issue is ongoing? Hope that too fixes itself.